the missing link to change the future of cancer care

Being diagnosed with cancer can be one of the most stressful and unbalanced moments in a person’s life. The news delivery itself is sufficient to cause confusion and panic, but diagnosis is only the first step, although it can be likened to Alice’s experience of falling into a rabbit hole.

Imagine being diagnosed and trying to tie the knot between the upcoming information and the question. Do you need surgery? What are my treatment options? Which specialist should I consult with? Where can I get treatment? How can I manage my work? Are there any clinical trials that are eligible? The list of questions continues.

Technological advances in other areas of our lives have created expectations about the immediacy of information, how to obtain it, and what sources to trust. We are accustomed to gaining knowledge with just a click. However, healthcare is a complex system.

By any standard, we have a first-class health care system, but our desires, such as providing fair access, are often inadequate. The complexity of the system means that there are still areas of unmet needs. Outcomes of local, remote and indigenous communities. Access to new treatments; new diagnoses; or increased costs of care.

Over the last decade, partnerships with leading technology companies such as Google and Apple, as well as emerging companies that are using the power of data to influence their healthcare delivery, have accelerated globally.

Data collection and analysis is the key to understanding unmet needs and effectiveness, thus paving the way for innovation. Customers are often at the center of change when data impacts commercial activity. But in healthcare, are patients at the heart of the health tech revolution, and are they even considered customers?

It is no exaggeration to say that the current interaction between health and technology in Australia is lagging. Some technical solutions used in health care are beginning to be seen, but most of them are developed for clinicians rather than patients. Perhaps that’s because the system considers clinicians as customers.

Looking at functional efficiency, all the paths lead to clinicians. In other industries, efficiency leads to increased profits, so isn’t it just a follow-up? Efficiency is not always the key to effectiveness, and the main purpose of our healthcare system is to solve patient problems. One important thing seems to be missing in our technological transformation. It is the ultimate beneficiary.

Many platforms help increase efficiency in the clinical setting, but have little obvious benefit to the patient. The platform is developed with “efficiency” as the main goal, not patient needs. Efficiency is important to patients, but the need for assistance in navigating the world of cancer treatment is much more pronounced. They are “visitors” and need professionals to help them overcome barriers and show their way in unknown territories.

Bill Petch and Minister of Health and Elderly Care, Congressman Hong Greg Hunt.

At the latest ministerial roundtable led Cancer australiaThere was a clear agreement on the need to adopt high-tech solutions for cancer treatment. Many people recognize navigation as a problem, but we are still beginning to try to solve it primarily at the system level (such as trying to standardize data collection). This slows down and complicates our journey. Beginning the journey with patients as beneficiaries and solving their problems first will eventually solve system problems as well (and actually open up new channels of data acquisition).

While it’s great that patient-centric medical services are gaining national attention, existing nursing and navigator models target only a few more common cancers, and many that patients face. I don’t have the ability to solve the problem. By reversing the approach and putting the patient first, we will have a strong power to advocate their support and change.

All.Can Conduct a patient survey, a global initiative working to improve the efficiency of cancer treatment, to understand patient needs (across different tumor types) and identify gaps in cancer services in Australia did. The study understands what is currently working in Australia’s healthcare system, compares how Australia works with other countries, and identifies common problems that are negatively impacting patients. It was a chance to do it.

Notably, half of Australian respondents feel they do not have enough support to deal with their symptoms and admit that more than one-third are excluded from the decision-making process. ..

Patients have long shared their helplessness, and technology is a missing link that can help address many unmet needs. It can pave the way, so we can provide patients with valuable cancer services directly.

There is a need for stronger connections between patients, clinicians, and available services.

You need to move away from relying on traditional connection methods. Technology is the answer to creating bespoke services that meet your individual needs. It also helps predict the demand for a particular service and does not compromise the level of support people need after a cancer diagnosis.

I have a vision of what it should be like to be diagnosed with cancer. Technology plays an important role in this vision as a key to helping patients better navigate the entire continuum from diagnosis to beyond.

Imagine a scenario where you are diagnosed and sent coordinated information about who and when to meet you and your loved ones, rather than falling into a rabbit hole. You can understand the appointments you need to attend and manage them through your smart device.

You use this technology to track your progress and all the different people along your journey (professionals, related medical professionals, counselors, etc.). Beyond your needs, you are in direct communication with the cancer treatment navigators who have been involved with you since the day of your diagnosis. If necessary, you can also consult directly. We have technology and human resources that are ready to use when you need them.

The road ahead of you is a little clearer so you can continue your life. You feel more supportive and empowered, and know that thanks to a better navigation system you can answer any question you may have.

This scenario should be a reality, not a vision, for Australians regardless of the cancer diagnosed. The most important benefit that technology can bring to Australians is fair access to cancer services. Studies have shown that improving national access consistency can improve survival.

Starting a discussion on a patient-centric hybrid model for medical services, the use of people’s power and technical resources, is the first step in achieving this vision.

By consulting and engaging with patients and other stakeholders at every step of the design process, you can develop a cancer treatment model that is easy to navigate. Working together will not only make sense in the real world, but will also enable solutions that make the most of technology for cancer treatment. It can improve survival and quality of life, but it can also reduce costs over time.

At All.Can, we are determined to continue to defend our patients and include their perspectives, from designing service delivery models to decision making. We aim to bring patient-centered technological advances to people living with cancer.

Top image credit: © / au / Rido

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