Meter research Encourages people with intellectual disabilities and autism and their caregivers to participate in programs aimed at improving the way medical services are delivered.
Researcher from Mater Intellectual Disability and Autism Services (MIDAS) Is developing new education and training programs for doctors, nurses, and related healthcare professionals, and organizations are seeking input to co-design the framework.
The first participants in the Enhanced Access to Services for Health (EASY-Health) study are from the Endeavor Foundation’s Learning and Lifestyle Center in Toowoomba. Mater Research is looking for more participants to participate in the survey on its Brisbane and Wide Bay sites.
Dr. Cathy Franklin, Principal Investigator and Psychiatrist at Mater Intellectual Disability and Autism Service (MIDAS), said: Deterioration of health.
“Lack of understanding can contribute to worsening the relationship between healthcare providers and patients. Clinicians do not want to be more adapted to their treatment plans; and some health issues are appropriate. Instead of being investigated, it was dismissed as a symptom of the disorder, “said Dr. Franklin.
Dr. Katie Brooker of Mater Researcher said that people with intellectual disabilities and autism are part of the process at every stage.
“Our research helps us to listen to and understand the problems of people with intellectual disabilities, people with autism spectrum disorders, and their supporters. This helps us design and provide training solutions. And you can evaluate the program on the pilot site, “said Dr. Brooker.
“People with intellectual disabilities die up to 30 years earlier than people without disabilities and often die from preventable causes. People with autism spectrum disorders also die earlier. They are also diagnosed. There is also a high incidence of poor or poorly managed physical and mental health conditions, which requires improved training and education of medical professionals, “she said.
David Blower, Interim CEO of the Endeavor Foundation, said: They are people with living experience who are in the best position to show us the kind of change they need. “
The pilot study will be conducted at five sites: Endeavor Foundation Toowoomba-Darling Downs. Mater Young Adult Health Center-Brisbane; Queensland Diabetes and Endocrinology Center-Brisbane; Prince Charles Mental Health Services-Brisbane; and Marie Bolomental Health Services-Wide Bay.
The study is funded by the Australian Government Social Welfare Bureau..
Mater invites Queenslanders with disabilities to help shape health care Source link Mater invites Queenslanders with disabilities to help shape health care